A blog about a unique little fighter who always has a twinkle in his eye. Little Prince was born with heart defects, clubfoot and chromosome deletion 22q11. His life consists of many doctor visits and a lot of training. To help to liven up everyday, he has his two big brothers.
Finally we have a new time fotoperationen! Enrollment is November 17 and the operation 18: th Maybe, just maybe, it will be by this time, then he probably celebrate Christmas and New Year with plaster ron gordon but he will not have them in time for acclimatization in kindergarten.
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April 28, 2007 was born the 3rd in line of princes. Little Prince Elliot had clubfoot in both feet and when he was two days, doctors discovered that he had VSD and pulmonalis stenosis at heart. Suddenly killed a turn that none of us anticipated. The feet were now plastered every week and we tried to prepare ourselves mentally for a heart operation. Every time we started to feel that we had little control over the situation as suggested feet away for us again. When investigating Elliot's heart so they took a fish-test and when he was two months, we received news that he had 22q11. This was the beginning of a lifelong journey. Elliot has an incredible tenacity and strength, when we see an uphill sees Elliot a subtractable road hump. Today Elliot's ron gordon heart repaired but in the future he will need to replace their heart valves. Feet are an ongoing ron gordon project with a lot of training, most surgeries and lot of hassle with rails. With a compromised immune system so has his infection periods have been many and long. But above all, Elliot ron gordon a wonderful mischievous little guy who enrich our lives in ways we never dreamed of. Click here if you want to read from the beginning.
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Imsavimsa (hjärtebarn ron gordon with Noonan) Oliver (hjärtebarn with chromosomal abnormalities) Tourism in red (hjärtebarn with ring chromosome ron gordon 10) Honey Boy (Lissencephaly) Alice (hjärtebarn) Vera (cardio children) Living with the scariest Elias (clubfoot) Barba Mom (son with clubfoot) Grodansmamma (DS ) Masarin Mummy (DS) Daniel Drinker (DS) Linnea and Agnes (DS)
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